Dr Julie Cook
Research Fellow, Applied Health Research Hub
Julie is a Research Fellow who specialises in intersectional gender justice issues in health, women’s health and wellbeing, and research ethics. She is research active internationally, collaborating on a number of ventures with high global impact, including the Global Code of Conduct on Research in Resource-poor Settings. Nationally, her work has a focus on intersectional women’s health-related issues. Julie is an Associate Fellow of the Higher Education Academy, Vice-Chair of UCLan’s Health Ethics Panel, and a member of the International Editorial Board of the Sage journal Research Ethics.
Julie is a Research Fellow in our Applied Health Research Hub (AHRh), leading the Academic Research Facilitation and Delivery Unit. Her main role is research-based. However, she also teaches research ethics, based in her own research and practice. This draws on 17 years of largely European Commission-funded research projects in international justice and ethics in health-related issues.
She has published in research ethics, women's health, and (eco)feminist theory/philosophy, which came together in her 2022 PhD by Published Works, At the intersection: Bringing an ecofeminist perspective to empirical (bio)ethics and equity in international research. Her main methodological interests are in (feminist) conceptual analysis and qualitative research. Her research forms part of the contemporary movement against Ethics Dumping (off-shoring of unethical research practices) and exploitation of vulnerable research participants.
Julie has a background since the 1980s in national health promotion in the NHS, and national campaigning around women’s health issues in the voluntary sector. She has also worked at local level in the North West providing women’s health services and has been a community representative around reproductive health/maternity issues and user representation in NHS service development.
She joined our Centre for Professional Ethics in 2005. Since, she has contributed to a range of European Commission-funded projects around international justice and ethics in health and science and technology issues as researcher, writer and editor, and on project and compliance management issues. Since 2014, Julie has been located in our (current incarnation) Applied Health Research Hub Academic Research Facilitation and Delivery Unit, which provides academic support to researchers across the university, broadening her experience in academic disciplines beyond philosophy, to connect with her original commitments to women's health. She has a developing interest in supporting people from a variety of backgrounds to make the transition to being an academic researcher, and with academic writing.
Julie developed the original women's health promotion initiatives around the introduction of the national breast and cervical cancer screening programmes at the NHS Health Education Authority in the late 1980s. She then ran award-winning women’s health and environment campaigns around sanitary protection and menstrual health issues, including the successful campaign for warning labels about toxic shock syndrome on tampon packs, for the London-based Women's Environmental Network (WEN) through the early 1990s. She co-founded the UK's first certificated course on ecofeminism at Birkbeck College, University of London in 1994.
She worked within the anti-vivisection (Assistant Campaigns Director, BUAV), and pro-choice movements (Information and Communications Officer, SATFA), before carrying out postgraduate research into the tensions between activism and academia, theory and practice, in the Philosophy Department at the University of Lancaster (1995-8). In the early 2000s she worked as an advocate and counsellor providing voluntary sector women's maternal mental health services (Post-natal Illness, Cumbria). As a community representative and health activist she co-ordinated the Lancaster Home & Natural Birth Support Group for several years, and was a member of the Lancaster & Morecambe Community Health Council, and a user representative on the Morecambe Bay Maternity Services Liaison Committee until resigning in 2002.
- BA Hons English & American Literature, University of Kent, 1986
- RSA Combined Certificate, Counselling Skills and Theory. Central School for Counselling and Therapy, 1993
- Associate Fellow Higher Education Academy 2017
- PhD, 2022: At the intersection: Bringing an ecofeminist perspective to empirical (bio)ethics and equity in international research. (Published Works)
- Research Ethics
- Ethics Dumping - using unethical research practices in Low-resource settings (national or international)
- Women's* Health
- *In keeping with my intersectional approach, ‘Woman’ or ‘women’ (girl / girls) should be taken to refer to and include all people who identify themselves as women (girls). In ‘women’s’ health services contexts, this may also include those with other gender identifications.
Julie joined our Centre for Professional Ethics in 2005 and has contributed to a range of (mainly) European Commission-funded projects around international justice and ethics in health and science and technology issues as researcher, writer and editor of published outputs, and on project and compliance management issues.
Julie’s empirical work is mainly qualitative, including most recently:
- “Resilience and post-traumatic growth in the transition to motherhood during the COVID-19 pandemic: A qualitative exploratory study”, G. Thomson, J. Cook, R. Nowland, W. Donellan, A. Topalidou, L. Jackson, V. Fallon. Scandinavian Journal of Caring Sciences. 2022;00:1–13.
- “ENABLE: Exploring the perinatal Needs And care of BAME women in LancashirE and South Cumbria”. Gill Thomson, Julie Cook, Raeesa Jassat, Nicola Crossland, Marie-Clare Balaam, Anna Byrom, Shirley Palmer, Sabina Gerrard. Final report December 2021.
- “Capturing Learning and Innovation Across the NWC During Covid (CLASSIC)”, Report prepared by George Georgiou, Rachel Georgiou, Julie Cook, Emma Joy Holland, Kulsum Patel, Lucy Hives, and Caroline Watkins on behalf of the CLASSIC Collaboration, April 2021.
- Evaluation of an integrated palliative service providing specialist care for heart failure patients with a life limiting illness. Final Report September 2019. Neil Wilson, Julie Cook, Clare Thetford. For St Catherine’s Hospice; not publicly available.
- "Qualitative exploration of women’s experiences of intramuscular pethidine or remifentanil patient-controlled analgesia for labour pain", Moran VH, Thomson G, Cook J, Storey H, Beeson L, MacArthur M, Wilson M. BMJ Open 2019.
Julie is a co-author of the Global Code of Conduct for Research in Resource-poor Settings (2018). She is also a co-editor of the now seminal collection, Ethics Dumping: Case Studies from North-South Research Collaborations (Schroeder D, Cook J, Fenet S, Hirsch F, V Muthuswamy (eds), 2018).
Her work is dedicated to the creation of equitable research relationships based on fairness, respect, care and honesty, and she has published widely in this area, including recently:
- “Avoiding gender exploitation and ethics dumping in research with women”, Julie Cook, July 2020, Cambridge Quarterly of Healthcare Ethics 29(3):470-479.
- “Preventing ethics dumping: the challenges for Kenyan research ethics committees”, Kate Chatfield, Doris Schroeder, Anastasia Guantai, Kirana Bhatt, Elizabeth Bukusi, Joyce Adhiambo Odhiambo, Julie Cook, Joshua Kimani. Research Ethics 1-22 May 2020 (open access here).
Use the links below to view their profiles:
- View their unique and persistent identifier on the ORCiD registry
- Full list of publications and articles on CLoK
- TRUST (to catalyse a global collaborative effort to improve adherence to high ethical standards around the world 2015-19)
- REWARD (Making Medicines Accessible to All 2014-19)
- PROGRESS (Promoting Global Responsible Research and Social Scientific and Innovation 2013 – 16)
- GEST (Global Ethics in Science and Technology 2011-14)
- Innova-P2 (Pharma Innovation 2008 - 11)
- Genbenefit (Genomics and Benefit Sharing with Developing Countries – From Biodiversity to Human Genomics 2006 – 10)
- San-Khoba! Prior Informed Consent and Benefit Sharing in the Hoodia Case, Wellcome Trust, 2006 – 8),
- MongolEthics (Ethics in Mongolian and South-East Asian Science and Technology 2006-7)
Use the links below to view their profiles: