Julie Cook

Research Fellow

Faculty of Health and Wellbeing

Brook Building, BB406

+44 (0) 1772 89 2549

jcook11@uclan.ac.uk

Julie joined what is now the Faculty of Health and Wellbeing in 2005. A Research Fellow, she is Manager of the Faculty’s Academic Research Support Team. She specializes in gender justice issues in health, women’s health, and research ethics, but provides support to a range of grant-funded projects. She is research active within the area of health and international justice.

She is research active within the area of health and international justice.

Julie was the founding Chair of Faculty of Health & Wellbeing Early Career Researchers’ Forum Forum (2016 -18) and is now an active member of the Mid-Career Researchers’ Forum and an Associate Fellow of the Higher Education Academy.

She is Deputy Vice Chair of UCLan’s Health Ethics Panel.

Full Profile

Julie has a background in national health promotion in the NHS and national campaigning around women’s health issues in the voluntary sector. She has also worked at local level providing women’s health services, and as a community representative around reproductive health/maternity issues and user representation in NHS service development.

Since 2014 Julie has been part of UCLan’s Faculty of Health and Wellbeing’s Academic Research Support Team, which provides administrative and academic support to researchers across the Faculty. She is co-manager of the academic Research Support Team staff. She has a developing interest in supporting people to make the transition to being an academic researcher.

She joined UCLan’s Centre for Professional Ethics in 2005 and has contributed to a range of European Commission-funded projects around international justice and ethics in health and science and technology issues as researcher, editor, and on project and compliance management issues: TRUST (to catalyse a global collaborative effort to improve adherence to high ethical standards around the world 2015-19), REWARD (Making Medicines Accessible to All 2014-19), PROGRESS (Promoting Global Responsible Research and Social Scientific and Innovation 2013 – 16) ; GEST (Global Ethics in Science and Technology 2011-14) 
Innova-P2 (Pharma Innovation 2008 - 11) ; Genbenefit (Genomics and Benefit Sharing with Developing Countries – From Biodiversity to Human Genomics 2006 – 10) ; San-Khoba! Prior Informed Consent and Benefit Sharing in the Hoodia Case, Wellcome Trust, 2006 – 8); and MongolEthics (Ethics in Mongolian and South-East Asian Science and Technology 2006-7).

Most recently she was a co-author of the Global Code of Conduct for Research in Resource-poor Settings

Julie’s empirical work is in qualitative evaluation, and she has recently co-authored a post-natal qualitative study for the RESPITE clinical trial of pain relief during labour (Dr Victoria Hall Moran / Dr Gillian Thomson), and conducted an evaluation of a palliative service for heart failure patients.

Julie developed the original women's health promotion initiatives around the introduction of the national breast and cervical cancer screening programmes at the NHS Health Education Authority in the late 1980s. She then ran award-winning women’s health and environment campaigns around sanitary protection and menstrual health issues, including the successful campaign for warning labels about toxic shock syndrome on tampon packs, for the London-based Women's Environmental Network (WEN) through the early 1990s. She co-founded the UK's first certificated course on ecofeminism at Birkbeck College, University of London in 1994. She worked within the anti-vivisection (Assistant Campaigns Director, BUAV), and pro-choice movements (Information and Communications Officer, SATFA), before carrying out postgraduate research into the tensions between activism and academia, theory and practice, in the Philosophy Department at the University of Lancaster (1995-8). She subsequently worked as an advocate and counsellor providing voluntary sector women's maternal mental health services (Post-natal Illness, Cumbria). As a community representative and health activist she co-ordinated the Lancaster Home & Natural Birth Support Group for several years, and was a member of the Lancaster & Morecambe Community Health Council, and a user representative on the Morecambe Bay Maternity Services Liaison Committee.

Qualifications
  • BA (Hons), English and American Literature, University of Kent, 1986.
  • RSA Combined Certificate, Counselling Skills and Theory. Central School for Counselling and Therapy, 1993.
Research Projects
Social Media

Publications

Kate Chatfield et al. (2018) Research with, not about, communities - Ethical guidance towards empowerment in collaborative research, a report for the TRUST project.

Ethics Dumping, Case Studies from North-South Research Collaborations

Eds – Doris Schroeder, Julie Cook, Francois Hirsch, Solveig Fenet, Vasantha Muthuswamy

http://link.springer.com/book/10.1007%2F978-94-007-6205-3

Gender and Vulnerable Populations in Benefit Sharing: An Exploration of Conceptual and Contextual Points, Cambridge Quarterly of Healthcare Ethics 18(2):130-7 · May 2009 DOI: 10.1017/S0963180109090227

Ethics Dumping - Paradigmatic Case Studies; a report for TRUST

NHS Genomic Medicine Centres National Service Evaluation of the Consent Process and Participant Materials used in the 100,000 Genomes Project

Caroline Benjamin 1, Markella Boudioni 1, Helen Ward 1, Elliot Marston 1, Antje Lindenmeyer 1, Munirah Bangee1, Julie Cook Lucas 1, Ralph Leavey 1, Mark Caulfield 2, Tom Fowler 2, Anneke Lucassen 2, Fiona Rennie 2, Laura Riley 2, Michael Parker 2, Vivienne Parry 2, Ellen Thomas 2, Christine Patch 2, Alison Cranage 3, Lisa Dinh 3

1 Service Evaluation Project Team

2 Service Evaluation Steering Group

3 Genomics England Support for the Evaluation

https://www.genomicsengland.co.uk/consent-evaluation/