Health-related quality of life measurement in systemic lupus erythematosus


This programme of work aims to:

  • Develop and evaluate a disease-specific health-related quality of life instrument for adults with systemic lupus erythematosus (LupusQoL).
  • Describe the patient perspective of SLE in relation to Health-related Quality of Life Concepts.
  • Identify whether demographic or clinical factors explain patient-reported health-related quality of life
  • Undertake a systematic review of HRQOL measurement in SLE.

Project lead

  • Professor Janice Abbott

Project staff

  • Dr Chris Sutton
  • Montana Mullen