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Patient-reported outcome measurement in cystic fibrosis

Overview

This programme of work aims to:

  • Develop and evaluate patient-reported outcome measures (e.g. health-related quality of life; pulmonary exacerbations).
  • Evaluate the use of health-related quality of life measures in clinical trials.
  • Evaluate cross-cultural differences in health-related quality of life.
  • Identify the demographic, clinical and psychological factors that explain patient-reported health-related quality of life
  • Evaluate the associations between health-related quality of life, disease progression and survival.

Project lead: Professor Janice Abbott

Project staff: Dr Margaret Hurley