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Bernie Carter

Prof. Bernie Carter

Professor of Children’s Nursing

School of Nursing

Brook Building, BB437

+44 (0) 1772 89 3720

bcarter@uclan.ac.uk

Subject Areas: Nursing and Midwifery

Children and their families are at the heart of Bernie’s research which focuses on lives disrupted by pain, illness, disability and disadvantage. Her research focuses on children with complex health care needs and life-limiting/life-threatening illness. Her research aims to develop the knowledge base underpinning practice and service delivery. She is a Fellow of the RCN in recognition of her contribution to children’s pain. Her research is narrative, participatory and arts/activities-based.

Bernie is research active within the area of families, children and life transitions.

She contributes to the following domains of research Children’s Pain and Symptoms Research Group, the Illness, Complex Health Care Needs and Disability Research Group and the Children’s Critical Care Nursing Research Group.

Full Profile

Bernie has been based at the University of Central Lancashire since 2000. Bernie is Professor of Children’s Nursing at the University of Central Lancashire and Director of the Children’s Nursing Research Unit (CNRU) at Alder Hey Children’s NHS Foundation Trust. She is a Fellow of the Royal College of Nursing. She is Visiting Professor at Edge Hill University and Clinical Professor at the University of Tasmania.

At UCLan, she leads the Families, Children and Life Transitions Research Group where she works closely with excellent colleagues such as Dr Karen Whittaker (parenting and supporting family life, especially in the early years), Dr Lyvonne Tume (children’s critical care nursing) and Dr Janine Arnott (children’s medicines and children’s health policy).. Since 2008 she has been leading the development of the Children’s Nursing Research Unit (CNRU). The CNRU is a unique, ambitious and collaborative initiative between three Higher Education Institutions (the University of Central Lancashire, Liverpool John Moore’s University and Edge Hill University) and a Foundation Trust (Alder Hey Children’s NHS Foundation Trust). The CNRU aims to celebrate and further establish the distinctive contribution of children’s nursing research. The CNRU is a research community comprised of nursing scholars, clinicians, children and their families. Within the Unit she works with colleagues including Dr Lyvonne Tume, Dr Caroline Sanders, Dr Lucy Bray and Clare van Miert whose drive and passion for undertaking research is inspirational.

She has extensive experience of supporting new researchers and successfully supervising doctoral research students through to completion and mentoring professionals during their early postdoctoral careers.

She is the Editor-in-Chief for the Journal of Child Health Care (Sage Publications). The Journal of Child Health Care is the official journal of the Association of British Paediatric Nurses. She has steered the journal from its early days to establishing it as a journal with a high international reputation. She is supported in this endeavour by Professor Helen Langton, Professor Jean Ivey and Associate Professor Jenny Fraser who work as Associate Editors. She is Chair of the RCN Pain in Children and Young People Community.

In 2015 she was awarded the Presidential Medal for Excellence in Person-centred Healthcare by the European Society for Person–Centred Healthcare (ESPCH).

Publications

Larkins, C., Thomas, N., Carter, B., Farrelly, N.J., Judd, D.B & Lloyd, J. (2015) Intergenerational support for children’s protagonism: methodological moves towards critical children rights research framed from below. The International Journal of Children's Rights, 23: 332-364 . ISSN 0927-5568

Carter, B., Hunt, A., Edwards, M. (2014) ‘Being a presence’: the ways in which Family Support Workers encompass, embrace, befriend, accompany and endure with families of life-limited children. Journal of Child Health Care. SSN: 1741-2889, PMID: 24459101,

Carter, B., Grey, J., McWilliams, E., Clair, Z., Blake, K., & Byatt, R.al (2014) “Just kids playing sport (in a chair)”: experiences of children, families and stakeholders attending a wheelchair sports club. Disability and Sport. 29(6): 938-952.

Carter, B. & Ford, K. (2013), "Researching children's health experiences: The place for participatory, child-centered, arts-based approaches", Research in Nursing & Health. 36( 1): 95-107.

More publications

Qualifications

  • PhD: Manchester Metropolitan University (1995)
  • BSc (Hons) Nursing Studies: Manchester Metropolitan University (1989)
  • SRN & RSCN Hospitals for Sick Children, Great Ormond Street, London (1980)

Memberships

  • Association of British Paediatric Nurses (also act as Trustee)
  • Royal College of Nursing, Pain in Children and Young People Community (Chair)
  • Royal College of Nursing, Children and Young People Professional Issues Forum (Steering Committee Member)
  • Council of Children’s Nurses Inc., NSW, Australia. Honorary Member (from April 2011)

External Roles

  • Editor-in-Chief to Journal of Child Health Care (Sage Publications) since 1995
  • Fellow of the Royal College of Nursing (10th May 2009).
  • Presidential Medal from the European Society for Person-Centred Healthcare (June 2015).
  • Honorary Member Council of Children’s Nurses Inc., NSW, Australia.
  • Association of British Paediatric Nurses (also act as Trustee)
  • Royal College of Nursing, Pain in Children and Young People Community (Chair)
  • Royal College of Nursing, Children and Young People Professional Issues Forum (Steering Committee Member)

Teaching Activities and Responsibilities

Currently supervising (as Director of Studies in most cases) In order of expected completion date):

Submitted

  • Clare van Miert (PT): Measuring clinical severity in infants with bronchiolitis. University of Liverpool. (NIHR CATP studentship).

Planned submission in 2015

  • Victoria Appleton FT: Implementation of Smile4Life in Lancashire. University of Central Lancashire
  • Julie Dix (FT) Service users, student nurses, mentors/lecturers: the impact of service users within the classroom and curriculum. University of Central Lancashire
  • Dave Pulsford: (PT) PhD by Published Work. Towards a Theory of Dementia Empathy: A Critical Analysis of the Personal Qualities required by Professional and Lay Carers of People with Dementia.
  • Submission due 2016 onwards
  • Kim Bird (PT): Adverse Drug Reactions in a Regional Oncology Unit. University of Central Lancashire
  • Sarah Doyle (PT): Young peoples' experiences of growing up with a bladder augment. University of Central Lancashire
  • Jennie Craske (PT): Management of sedation in children. Liverpool John Moores University
  • Alison Flynn (PT): Focusing on parents’ experiences of managing their child post-tracheostomy. University of Central Lancashire
  • • Rebecca Hill (PT): Nutrition and surgical site infection in a paediatric cardiac surgical population. University of Central Lancashire
  • Sonia Ramdour (PT): Young people’s adherence and use of antipsychotic medication. University of Central Lancashire.
  • Jan Forber (FT): Undergraduate nurse clinical education: Using Appreciative Inquiry to explore innovative approaches. University of Technology, Sydney.
  • Helena Dunbar (PT): A mixed methods study to explore which hospice and palliative care services would make the most difference to the greatest number of children and families within the East Midlands. DeMontfort University.
  • Jill Snodin (PT): What are the perception and experiences of children with long term conditions of being held for clinical procedures within hospital environments? Edge Hill University.
  • Sara Melville (PT): A study to investigate what influences health professionals to initiate, continue or stop holding children undergoing clinical procedures. Edge Hill University.
  • Gerri Sefton (PT): The impact of the introduction of a Paediatric Early Warning Tool at a large children’s hospital. University of Liverpool.
  • Chris Preston (PT) Holding children in pre hospital care settings. Edge Hill University.
  • Laura Walsh: (PT) Endotracheal suctioning practices in PICUs and expert nurses’ perceptions of risk and risk mitigation practices in suctioning high risk children. University of Central Lancashire

Recently completed PhD students:

  • Lorna Brookes (PhD): Children’s experiences of growing up whilst a parent is in prison. University of Central Lancashire
  • Laura Buckley (PhD): Narrating the Elusive: Stories of Wellbeing in Later Life. University of Central Lancashire (Funded studentship) (2014.)
  • Arlene McCurtin (PhD): Deconstructing clinical practice and searching for scientific foundations: Examining decision-making scaffolds underpinning intervention choices by speech & language therapists. University of Central Lancashire
  • Tammy Power (PhD) Disrupted Mothering: a drama in four acts (University of Western Sydney, Australia).
  • Recently completed MSc by Research Students
  • Kay Crook (2015) Paediatric IBD Nurses’ Experiences of Using the PIBDPHR. University of Central Lancashire
  • Niki Rowe (2014) Telephone Advice and Triage within Paediatric Oncology. University of Central Lancashire
  • Janet Clark (2014) Children with Cystic fibrosis University of Liverpool/Alder Hey NHSFT
  • Nicki Mackett(2014) Navigating influences on haemophilia care; an exploration of the lived experience of being mother to a boy with severe haemophilia. University of Central Lancashire
  • Olivia Lloyd (2014) From Symptom Onset to Diagnosis: a critical exploration into the experiences of children with Juvenile-onset Systemic Lupus Erythematosus. University of Central Lancashire (CNRU Funded studentship)

Research

Beresford, M. et al., Transitional Care for Young Adults with Long Term Conditions. NIHR CLAHRC North West Coast.

Young, M., Carter, B., Arnott, J. von Baeyer, C. Selection of Verbal Anchors to Improve Children's Self Report Using the Numerical Rating Scale (NRS) of Pain Intensity..

Arnott,J., Carter, B. et al. An investigation of the methods used by parents to administer medicines where a child is reluctant to or has difficulty in taking medicines..

Carter, B., Whittaker, K. & Arnott, J. Remote (Telehealth) Parental Monitoring of Signs of Infection in Children with Neuropathic Bladder: Research-Evaluation. Completed April 2015.

Satchwell, C., Carter, B., Larkins, C.Day, H. & Coulton P. Stories to connect with: disadvantaged children creating ‘phygital’ community artefacts to share their life-narratives of resilience and transformation. AHRC Connected Communities. Commenced April 2014.

Carter, B., Simons, J., Bray, L. Developing and Sharing the Pain Expertise of Parents of Children with Profound Cognitive Impairment. WellChild, Commenced Sept 2013

Carter, B., Bray,L., Ford,K., Courteny-Pratt,H., Dickinson, A., Water, T. International Children’s Illness and Symptom Study: perspectives of children with chronic illness from the UK, Australia and New Zealand. (UCLan, Edge Hill, University of Tasmania, University of Technology, Auckland and associated hospitals)

Conferences

Member of Scientific Planning Committees for many conferences including: 2007 & 2008 RCN Children and Young People Conference: 2015 RCPCH-RCN Conference; 2015Turkish Paediatric Association (2nd International and 5th National Pediatric Nursing Congress).

Recent conference papers:

Robichaud, F. & Carter, B. (2015) Appreciative inquiry et familles réfugiées : oser aborder la recherche autrement! AFCAS Conference, Montreal, Canada May.

Carter, B., Dickinson, A. Ford, K., Bray, L., Arnott, J., Water, T., Tichanow ,C. (2015) How children and young people self-manage their chronic illness: Giving children a voice through photo-elicitation. RCPCH-RCN Conference: Advocating for children in a rapidly changing world. Birmingham, UK. 28th-30th April.

Carter, B., Ford, K., Dickinson, A. Bray, L., Water, T., Arnott, J. Circle: one way of developing international research practice. RCPCH-RCN Conference: Advocating for children in a rapidly changing world. Birmingham, UK. 28th-30th April.

Bray, L., Carter, B. Snodin, J. Holding children for clinical procedures; an ethical consideration of the evidence. RCPCH-RCN Conference: Advocating for children in a rapidly changing world. Birmingham, UK. 28th-30th April.

Carter, B. Degrees of difference and connection: exploring the experience of pain in the lives of children and adults. British Pain Society, ASM. April 2015 Invited plenary paper

Carter, B. “It hurts, but….”: can using collage, art and stories help generate a deeper appreciation of children’s experiences of pain? British Pain Society, ASM. April 2015

Carter, B. ‘My child is like a Rubik’s cube’: the challenges for parents and professionals in assessing the pain of children with profound cognitive impairment. British Pain Society, ASM. April 2015

Carter, B., Dickinson,A., Ford, K., Bray, L., Arnott, J., Water, T., Sanson,K., Tichanow, C. (2014) Click! Photo-elicitation. (Poster). The 5th Congress of the European Academy of Paediatric Societies (EAPS): Barcelona 17-21 October.

Neufield, M. Water,T., Carter, B. (2014) Ethical and Clinical Issues related to emergence phenomena in paediatric ketamine sedation. [Poster]. 5th Congress of the European Academy of Paediatric Societies. Oct 17-21st .2014 Barcelona, Spain.

Carter, B., Dickinson, A., Ford, K., Bray, L., Arnott, J., Water, T., Tichanow, C. ‘Getting on’ and ‘Fitting in’ : Young children’s experiences of growing up with chronic illness in England, Australia and New Zealand. The 5th Congress of the European Academy of Paediatric Societies (EAPS): Barcelona 17-21 October.

Carter, B., Bray, L., Simons, J., Satchwell, C. (2014) Consulting with Children is it really worth the effort? The 5th Congress of the European Academy of Paediatric Societies (EAPS): Barcelona 17-21 October.

Craske, J. Carter, B., Parry, . Coles, S. (2014) Paediatric Pain Assessment Workshop. European Society of Paediatric Anaesthesiology. 18th-20th September.

Carter, B. & Franck, A. (2014) Who owns stories? Narrative Symposium. University of Central Lancashire, Preston. 15th September.

Carter, B., Arnott,J., Peak, M., Hawcut, D. (2014) Restrictions to the use of codeine in paediatrics: impact and implications for practice. ACCN Children and Young People’s Nursing International Conference: Building the evidence base for practice. Jersey General Hospital, St Helier, Jersey, Channel Islands, 4-5th September.

Carter, B., Simons, J., Bray, L., Arnott ,J. (2014)Assessing and managing pain in children who have complex needs. ACCN Children and Young People’s Nursing International Conference: Building the evidence base for practice. Jersey General Hospital, St Helier, Jersey, Channel Islands, 4-5th September.