School of Nursing
Brook Building, BB437
+44 (0) 1772 89 3720
Subject Areas: Nursing and Midwifery
Children and their families are at the heart of Bernie’s research which focuses on lives disrupted by pain, illness, disability and disadvantage. Her research focuses on children with complex health care needs and life-limiting/life-threatening illness. Her research aims to develop the knowledge base underpinning practice and service delivery. She is a Fellow of the RCN in recognition of her contribution to children’s pain. Her research is narrative, participatory and arts/activities-based.
Bernie is research active within the area of families, children and life transitions.
She contributes to the following domains of research Children’s Pain and Symptoms Research Group, the Illness, Complex Health Care Needs and Disability Research Group and the Children’s Critical Care Nursing Research Group.
Bernie has been based at the University of Central Lancashire since 2000. Bernie is Professor of Children’s Nursing at the University of Central Lancashire and Director of the Children’s Nursing Research Unit (CNRU) at Alder Hey Children’s NHS Foundation Trust. She is a Fellow of the Royal College of Nursing. She is Visiting Professor at Edge Hill University and Clinical Professor at the University of Tasmania.
At UCLan, she leads the Families, Children and Life Transitions Research Group where she works closely with excellent colleagues such as Dr Karen Whittaker (parenting and supporting family life, especially in the early years), Dr Lyvonne Tume (children’s critical care nursing) and Dr Janine Arnott (children’s medicines and children’s health policy).. Since 2008 she has been leading the development of the Children’s Nursing Research Unit (CNRU). The CNRU is a unique, ambitious and collaborative initiative between three Higher Education Institutions (the University of Central Lancashire, Liverpool John Moore’s University and Edge Hill University) and a Foundation Trust (Alder Hey Children’s NHS Foundation Trust). The CNRU aims to celebrate and further establish the distinctive contribution of children’s nursing research. The CNRU is a research community comprised of nursing scholars, clinicians, children and their families. Within the Unit she works with colleagues including Dr Lyvonne Tume, Dr Caroline Sanders, Dr Lucy Bray and Clare van Miert whose drive and passion for undertaking research is inspirational.
She has extensive experience of supporting new researchers and successfully supervising doctoral research students through to completion and mentoring professionals during their early postdoctoral careers.
She is the Editor-in-Chief for the Journal of Child Health Care (Sage Publications). The Journal of Child Health Care is the official journal of the Association of British Paediatric Nurses. She has steered the journal from its early days to establishing it as a journal with a high international reputation. She is supported in this endeavour by Professor Helen Langton, Professor Jean Ivey and Associate Professor Jenny Fraser who work as Associate Editors. She is Chair of the RCN Pain in Children and Young People Community.
In 2015 she was awarded the Presidential Medal for Excellence in Person-centred Healthcare by the European Society for Person–Centred Healthcare (ESPCH).
Larkins, C., Thomas, N., Carter, B., Farrelly, N.J., Judd, D.B & Lloyd, J. (2015) Intergenerational support for children’s protagonism: methodological moves towards critical children rights research framed from below. The International Journal of Children's Rights, 23: 332-364 . ISSN 0927-5568
Carter, B., Hunt, A., Edwards, M. (2014) ‘Being a presence’: the ways in which Family Support Workers encompass, embrace, befriend, accompany and endure with families of life-limited children. Journal of Child Health Care. SSN: 1741-2889, PMID: 24459101,
Carter, B., Grey, J., McWilliams, E., Clair, Z., Blake, K., & Byatt, R.al (2014) “Just kids playing sport (in a chair)”: experiences of children, families and stakeholders attending a wheelchair sports club. Disability and Sport. 29(6): 938-952.
Carter, B. & Ford, K. (2013), "Researching children's health experiences: The place for participatory, child-centered, arts-based approaches", Research in Nursing & Health. 36( 1): 95-107.More publications
Currently supervising (as Director of Studies in most cases) In order of expected completion date):
Planned submission in 2015
Recently completed PhD students:
Beresford, M. et al., Transitional Care for Young Adults with Long Term Conditions. NIHR CLAHRC North West Coast.
Young, M., Carter, B., Arnott, J. von Baeyer, C. Selection of Verbal Anchors to Improve Children's Self Report Using the Numerical Rating Scale (NRS) of Pain Intensity..
Arnott,J., Carter, B. et al. An investigation of the methods used by parents to administer medicines where a child is reluctant to or has difficulty in taking medicines..
Carter, B., Whittaker, K. & Arnott, J. Remote (Telehealth) Parental Monitoring of Signs of Infection in Children with Neuropathic Bladder: Research-Evaluation. Completed April 2015.
Satchwell, C., Carter, B., Larkins, C.Day, H. & Coulton P. Stories to connect with: disadvantaged children creating ‘phygital’ community artefacts to share their life-narratives of resilience and transformation. AHRC Connected Communities. Commenced April 2014.
Carter, B., Simons, J., Bray, L. Developing and Sharing the Pain Expertise of Parents of Children with Profound Cognitive Impairment. WellChild, Commenced Sept 2013
Carter, B., Bray,L., Ford,K., Courteny-Pratt,H., Dickinson, A., Water, T. International Children’s Illness and Symptom Study: perspectives of children with chronic illness from the UK, Australia and New Zealand. (UCLan, Edge Hill, University of Tasmania, University of Technology, Auckland and associated hospitals)
Member of Scientific Planning Committees for many conferences including: 2007 & 2008 RCN Children and Young People Conference: 2015 RCPCH-RCN Conference; 2015Turkish Paediatric Association (2nd International and 5th National Pediatric Nursing Congress).
Recent conference papers:
Robichaud, F. & Carter, B. (2015) Appreciative inquiry et familles réfugiées : oser aborder la recherche autrement! AFCAS Conference, Montreal, Canada May.
Carter, B., Dickinson, A. Ford, K., Bray, L., Arnott, J., Water, T., Tichanow ,C. (2015) How children and young people self-manage their chronic illness: Giving children a voice through photo-elicitation. RCPCH-RCN Conference: Advocating for children in a rapidly changing world. Birmingham, UK. 28th-30th April.
Carter, B., Ford, K., Dickinson, A. Bray, L., Water, T., Arnott, J. Circle: one way of developing international research practice. RCPCH-RCN Conference: Advocating for children in a rapidly changing world. Birmingham, UK. 28th-30th April.
Bray, L., Carter, B. Snodin, J. Holding children for clinical procedures; an ethical consideration of the evidence. RCPCH-RCN Conference: Advocating for children in a rapidly changing world. Birmingham, UK. 28th-30th April.
Carter, B. Degrees of difference and connection: exploring the experience of pain in the lives of children and adults. British Pain Society, ASM. April 2015 Invited plenary paper
Carter, B. “It hurts, but….”: can using collage, art and stories help generate a deeper appreciation of children’s experiences of pain? British Pain Society, ASM. April 2015
Carter, B. ‘My child is like a Rubik’s cube’: the challenges for parents and professionals in assessing the pain of children with profound cognitive impairment. British Pain Society, ASM. April 2015
Carter, B., Dickinson,A., Ford, K., Bray, L., Arnott, J., Water, T., Sanson,K., Tichanow, C. (2014) Click! Photo-elicitation. (Poster). The 5th Congress of the European Academy of Paediatric Societies (EAPS): Barcelona 17-21 October.
Neufield, M. Water,T., Carter, B. (2014) Ethical and Clinical Issues related to emergence phenomena in paediatric ketamine sedation. [Poster]. 5th Congress of the European Academy of Paediatric Societies. Oct 17-21st .2014 Barcelona, Spain.
Carter, B., Dickinson, A., Ford, K., Bray, L., Arnott, J., Water, T., Tichanow, C. ‘Getting on’ and ‘Fitting in’ : Young children’s experiences of growing up with chronic illness in England, Australia and New Zealand. The 5th Congress of the European Academy of Paediatric Societies (EAPS): Barcelona 17-21 October.
Carter, B., Bray, L., Simons, J., Satchwell, C. (2014) Consulting with Children is it really worth the effort? The 5th Congress of the European Academy of Paediatric Societies (EAPS): Barcelona 17-21 October.
Craske, J. Carter, B., Parry, . Coles, S. (2014) Paediatric Pain Assessment Workshop. European Society of Paediatric Anaesthesiology. 18th-20th September.
Carter, B. & Franck, A. (2014) Who owns stories? Narrative Symposium. University of Central Lancashire, Preston. 15th September.
Carter, B., Arnott,J., Peak, M., Hawcut, D. (2014) Restrictions to the use of codeine in paediatrics: impact and implications for practice. ACCN Children and Young People’s Nursing International Conference: Building the evidence base for practice. Jersey General Hospital, St Helier, Jersey, Channel Islands, 4-5th September.
Carter, B., Simons, J., Bray, L., Arnott ,J. (2014)Assessing and managing pain in children who have complex needs. ACCN Children and Young People’s Nursing International Conference: Building the evidence base for practice. Jersey General Hospital, St Helier, Jersey, Channel Islands, 4-5th September.